My First Kiss and...Who Cares About Other Stuff, A Boy Kissed Me!

Each time I post an update, please share my story by updating your social networks, e-mailing all of your contacts, and talking to your friends/co-workers.  And to all my girlfriends out there, tell your Ob/GYN about my story and maybe they'll routinely start offering SMA testing.  If we can help save a few of my future friends and their mommy, daddy, and loved ones from SMA, then my life, while cut short in time, will be beyond fulfilling in stature.

Since my first post 3 days ago, I've had 105,051 page views, which is amazing and I appreciate everyone forwarding my story to help inform and educate people about SMA.  With that said, right now that's not even the most important 3-letter acronym I want to talk about, because O-M-G, a B-O-Y totally kissed me yesterday and he is soooooooo cute.  His name is Cooper and he's 19 months old (I just love older men, they're so much more mature than 3 & 4 month olds).  My mommy and daddy said this might be the best kiss since Ryan Gosling & Rachel McAdams in The Notebook.  Then mommy said, "honey add kiss from Ryan Gosling to your bucket list...and don't forget to include mommy."  Daddy just kept saying, "Rachel McAdams, yes please"...whatever that means.  Anyway, back to Cooper, my little McDreamy, here he is in all his glory...

Cooper, like me, has SMA, but he has a different type than mine.  Regardless of what Type SMA he is, he's my type of guy.  He lights up an entire room when he enters it and I could tell daddy liked him because they sat around and talked baseball almost the entire time.  I am however a little worried about mommy & Cooper though because I think he may have liked her a little too much...

Excuse me Mr.; remember me?  I'm down here!

Cooper is quite the romantic, because he not only gave me my first kiss, but he also gave me my first gift from a boy, a new special "car seat" for children with SMA.  You see the car seat mommy & daddy had for me won't work anymore because my muscles are too weak to hold me up properly and it causes major issues with my breathing.  I really don't know why they call this thing a car seat because by definition I think the word seat means something you can sit on and in this bobsled/luge thingy I have to lay down.  Don't get me wrong, I love naps and staring at a cloth ceiling from time to time, but I'd rather be gazing outside at people walking their dogs, pretty landscaping, tall buildings, or just spilling my juice on daddy's car interior while banging on the window saying hi to the world as it passes me by.

Thanks Uncle Joey!  And sorry if my daddy annoyed you when he kept saying "Feel the rhythm, feel the rhyme, get on up it's bobsled time!  COOL RUNNINGS!"  Whatever that means.

That's Mrs. Jane (left) and Mrs. Nancy (right).  That's me on the floor with my Tutu in the air.

Physical Therapy?  More like Aromatherapy because this is easy. 

Bouncey ball...weeeeeeeeeeeeeeeeeeee!

OK, either I spoke to soon or Kim Kardashian just took Kris Humphries back. 

Daddy says if I ever come home with these,
it better be because I just left Physical Therapy.

Once physical therapy ended, I went home and relaxed for a little while before Roy, the massage therapist arrived.  You see, my Aunt Bo was kind enough to get me, my Nana Sandi, my mommy, and my daddy all massages.  Aunt Bo is currently dating my Uncle Kurt and he needs to go ahead and put a ring on it because I'm not getting any younger and I would make for an adorable flower girl in their wedding.

A little higher, maybe to the left a little, no back to the right...ahhhh yes, thank you Roy!

Items I Can Scratch Off My Bucket List:

1. My First Kiss - ahhhh Cooper my McDreamy
2. Meet someone else with SMA
3. Create a Twitter Account (AveryBucketList)
4. Create a Facebook Fan Page (Averys Bucket List)
5. Get a massage
6. Wear mardi gras beads
7. Inspire someone new
8. Have a first crush
9. Go over 100,000 page views (105,051)

Items I Can ADD To My Bucket List:

1. Kiss from Ryan Gosling for me & mommy.
2. A Rachel McAdams w/fries and a large water for daddy.

Up Next:
Whatever I bring to life, because I don't have time to sit back and wait for life to bring anything to me.

Don't forget to share my story by following & forwarding my blog, following me on Twitter  (AveryBucketList) and Like Me on Facebook (Averys Bucket List)!  While it may or may not help me in my lifetime, the more people who are aware of SMA, the less likely future children will be born with SMA, and the more likely there will one day be a cure for children who already have SMA!

http://www.facebook.com/AverysBucketList

https://twitter.com/#!/AveryBucketList

If you feel comfortable making monetary donations directly to a registered non-profit organization, mommy & daddy strongly encourage you to please do so in my name to the following organization:

Fight SMA (www.fightsma.org)

Cure SMA (www.curesma.org)

Sophia's Cure (www.sophiascure.org)

Thank you!