Big Day Tomorrow & Going Viral About SMA?

Each time I post an update, please share my story by updating your social networks, e-mailing all of your contacts, and talking to your friends/co-workers.  And to all my girlfriends out there, tell your Ob/GYN about my story and maybe they'll routinely start offering SMA testing.  If we can help save a few of my future friends and their mommy, daddy, and loved ones from SMA, then my life, while cut short in time, will be beyond fulfilling in stature.

Because I've had issues with feeding lately and for precautionary measures, my mommy, daddy, and doctors were able to get my Gastric Feeding Tube (G-Tube) surgery scheduled for tomorrow morning instead of "sometime within the next 4 weeks."  I was told the procedure should take 20 minutes to an hour, "it's nothing major, and it shouldn't hurt a bit."  With that said, the person who told me all of that did not appear to have one connected to them so how the hello operator do they know?  Sorry daddy, wrong number, but I'll let you know if they call back.  So while the G-Tube is a good thing for me and this is only a minor procedure, please think of me tomorrow...

Here's what's been going on since Monday:

Sooooooo, I was inside the TV Monday night and again on Tuesday throughout the day.  I also heard my mommy & daddy inside the radio talking about me and now mommy & daddy keep getting calls from someone in New York who says they are Inside an Edition and want to follow me around for a few days.  I don't know what being Inside an Edition means, but mommy and daddy said if it doesn't detract from our spending quality time together and it helps more people become aware about SMA, then I should at least entertain the idea.  Oh and some nice woman I don't know who lives on a hill in Washington is following my story and told me I should add talking to her with all of her friends present to my bucket list.  She had me at present, but then I realized that for someone who is following my story, you'd think she'd know I can't move my legs to walk, much less climb a hill.  So nice woman on the hill, if you meet me at the bottom & help me climb up the hill, I will gladly talk to you and all of your friends.  Can I bring my mommy, daddy, some of my new friends, and memories of my lost friends with me?

Here's just a few people inside of the TV, radio, and computer who are already helping to make others aware of Spinal Muscular Atrophy (SMA):

MSN
FOX 26 Houston - Sally MacDonald
KHOU 11 Houston - Kevin Reece
Houston Chronicle - Francisca Ortega
104 KRBE Houston - Roula & Ryan

Also I think it's important to keep in mind that while I'll do my best to provide any information my doctors give me, I'm ooooooonly 5-months old so you should proooooooobably speak with yooooooour doctor about SMA testing.  Unless of course your doctor likes spelling their name in shaving cream as much as I do, then you should proooobably ask someone else's doctor.


When I was first born my grandpa Tracy in Missouri bought me a camouflage onesie & overalls, so my uncles took me hunting in my backyard.  There wasn't much to hunt, but we did manage to catch a deer and "an extremely long legged pig that looked like one of those really long legged Star Wars robot things," according to daddy.  Whatever that means.

Daddy, wearing the borrowed camo shirt & hat, was born and raised in TX
and this was his first & probably last time hunting too.

No animal pinatas were hurt during our hunt, but I think daddy's going to be if he doesn't get them out of the kitchen reeeeeeeeeally soon.

Items I Can Scratch Off My Bucket List:

1. Be in the TV
2. Be in the Radio
3. Be in the Computer
4. Wear a giant flower on my head
5. Teach someone new about SMA
6. Write my name
7. Play with shaving cream
8. Go hunting with daddy & my uncles
9. Wear pink & camouflage at the same time
10. Just barely begin to go viral with my message about SMA

Up Next:
Whatever I bring to life, because I don't have time to sit back and wait for life to bring anything to me.

Don't forget to share my story by following & forwarding my blog, following me on Twitter  (AveryBucketList) and Like Me on Facebook (Averys Bucket List)!  While it may or may not help me in my lifetime, the more people who are aware of SMA, the less likely future children will be born with SMA, and the more likely there will one day be a cure for children who already have SMA!

http://www.facebook.com/AverysBucketList

https://twitter.com/#!/AveryBucketList

If you feel comfortable making monetary donations directly to a registered non-profit organization, mommy & daddy strongly encourage you to please do so in my name to the following organization:

Fight SMA (www.fightsma.org)

Cure SMA (www.curesma.org)

Sophia's Cure (www.sophiascure.org)

Thank you!