April 10, 2012 (Part Two)

Avery passed away April, 30, 2012.  Please continue sharing her story in an effort to raise awareness about Spinal Muscular Atrophy (SMA).  Thank you!

Each time I post an update, please share my story by updating your social networks, e-mailing all of your contacts, and talking to your friends/co-workers.  And to all my girlfriends out there, tell your Ob/GYN about my story and maybe they'll routinely start offering SMA testing.  If we can help save a few of my future friends and their mommy, daddy, and loved ones from SMA, then my life, while cut short in time, will be beyond fulfilling in stature.

My daddy insisted I start Part Two of my day yesterday with the above picture which features a hairy man like my daddy who is screaming into a microphone and talking about Vietnam.  I don't think my blog has reached Vietnam (yet), so why I'm saying good morning to their country I have no clue.  I would have thought saying Good Morning America would have been more appropriate considering 29,864 of my now 30,785 page viewers have come from the U.S.  That's a pretty amazing number considering less than 10 hours ago that figure was just under 20,000.  My mommy & daddy keep telling me to say the GMA reference is just a small hint being sent to someone named Robin Roberts & George Stephanopoulos - nice to see I'm not the only one with a hard last name).

My mommy & daddy also insisted I say thank you to everyone who has offered to help me complete my bucket list.  You are all an inspiration to me and my family and proof that there is still a lot of good in this world!

OK now for the rest of the fun stuff I got to do yesterday!

My mommy and I danced in the living room together to one of her favorite songs by Pat Green.  

Also my Aunt Kaitlin came over and threw me a tea party and celebrated my 5 month birthday with me and my mommy & daddy...

My daddy kept telling me I look like a Troll Doll in this picture, but I'll let you be the judge.

Oh and before my tea party & birthday celebration, my Aunt Crystal, Tia Adria, and 'Anake Jamie +1 bought me this cooooooooooool bubble machine!!!

Aunt Crystal & me blowing bubbles, while mommy, Tia Adria, and 'Anake Jamie +1 pose for the camera.

Are those bubbles coming from me?

Buuuuuuuuuuuuuuubbles!

Wait...what is this witchcraft "bubble machine"?

For the love of bubbles enough already!  Can't a sister just take a nap?

Ooooh and special thank you to my Aunt Marcy & my Uncle Jeff for coming to visit me!!!

  

Items I Can Scratch Off My Bucket List:

1. Celebrate my birthday.

2. Wrap my arms around mommy & dance with her.

3. Have a tea party

4. Blow bubbles with my mommy, daddy, and my aunties.

5. Dress like a troll doll wasn't on my list, but it made my mommy & daddy laugh, so I'm adding it.

6. Continue to make people smile & inspire others.

Up Next:
Mommy & daddy are taking me to where they met and on my first college tour.  I may get to layout at Sewell Park and play Frisbee with Frisbee Dan if he's there and we have enough time.  Until next time...

Don't forget to share my story by following & forwarding my blog, following me on Twitter  (AveryBucketList) and Like Me on Facebook (Averys Bucket List)!  While it may or may not help me in my lifetime, the more people who are aware of SMA, the less likely future children will be born with SMA, and the more likely there will one day be a cure for children who already have SMA!

http://www.facebook.com/AverysBucketList

https://twitter.com/#!/AveryBucketList

If you feel comfortable making monetary donations directly to a registered non-profit organization, mommy & daddy strongly encourage you to please do so in my name to the following organization:

Fight SMA (www.fightsma.org)

Cure SMA (www.curesma.org)

Sophia's Cure (www.sophiascure.org)

Thank you!