Each time I post an update, please share my story by updating your social networks, e-mailing all of your contacts, and talking to your friends/co-workers. And to all my girlfriends out there, tell your Ob/GYN about my story and maybe they'll routinely start offering SMA testing. If we can help save a few of my future friends and their mommy, daddy, and loved ones from SMA, then my life, while cut short in time, will be beyond fulfilling in stature.
My mommy & daddy told me I should start this blog by telling everyone thank you for forwarding my story and helping to spread awareness about SMA. One of the items on my bucket list is for my story to go viral in an effort to eradicate SMA...my daddy helped me with the word eradicate and quite frankly I don't even know what it means, but it sounds serious. I started my blog yesterday evening (4:30p) and as of right now (11:21p) there's been 19,705 total views in a total of 10 different countries. I can't count that high, but that certainly seems like a lot of views and we seem to be well on our way to going viral, but I still need all of the help I can get, so please keep forwarding my story to everyone you know!
I also overheard my daddy tell my mommy that he was contacted today by NBC & FOX News Houston as well as 104 KRBE in Houston because they read my blog and want to help me tell my story. I'm truly amazed at the amount of people who want to help me and who are praying for me and my mommy & daddy.
Oh and also a BIG thank you to two of my Aunt's who blogged about me today...my mommy & daddy read me your blogs and I love both of you very much!
Aunt Brooke in California - http://lifeonfriendshiplane.blogspot.com/2012/04/meet-avery.html
Aunt Kate in Washington, D.C. - http://mrandmrssmithgotowashington.blogspot.com/2012/04/averys-bucket-list.html
OK now for the fun stuff...check out some of the fun things I got to do today!
I went to some place called Schlitterbahn, which is apparently German for "The hottest coolest time in Texas" because that's all my G-Pa kept saying the entire time we were there. It was closed, but that didn't stop me, mommy, daddy, and G-Pa from having a good time inside the park while my Nana Sandi played "The Lookout" as my daddy called it. When we got back to the car Nana said it was all clear and she never saw anything. I would have liked to gone American Idol Randy Jackson on her and said, "Good Looking Out Nana", but since she didn't find whatever she was looking for I didn't feel it was necessary. Anyway, here's some pics of our experience today at Schlitterbahn.
|My daddy kept saying he's about to go Clark Griswold on someone...whatever that means.|
|Breaking the law, Breaking the law.|
|Seems friendly enough.|
|Saved by the bow!|
|Glad my getting sea sick doesn't stop my parents from smiling.|
|Wee! Wee! We we weeeeeeeeeeeeeeeeeee!|
|Shhhhhh, me & daddy are sleeping!|
Items I Can Scratch Off My Bucket List:
1. Break something - breaking the law, breaking the law.
2. Wrap my arms around my daddy.
3. Go to a water park.
4.Visit my Nana Sandi & G-Pa Steve in New Braunfels.
5. Stay up past my bedtime.
Don't forget to share my story by following & forwarding my blog, following me on Twitter (AveryBucketList) and Like Me on Facebook (Averys Bucket List)! While it may or may not help me in my lifetime, the more people who are aware of SMA, the less likely future children will be born with SMA, and the more likely there will one day be a cure for children who already have SMA!