Oh yeah...I also noticed there were a lot more blog comments, online articles, Facebook Fans, and Twitter feeds about me. So thank you to everyone who has been following me and everyone who just started following me. Don't forget to share my story with everyone you know! But make sure when you tell people about me, you tell them I'm not dying, I'm living...and they should be too!
Now before I tell you all about my last few days of fun, I want to make sure you know that just because two people are carriers of the SMA gene doesn't mean they can't or shouldn't make friends for me. All it means is that if they go about making me a friend the natural way (ewww yucky), then they KNOWINGLY stand a 25% chance that my friend will be born with SMA and a 50% chance that my friend will be born as a carrier of SMA. Their alternative to making me a friend without doing it, tee hee no pun intended, the natural way (again, ewww) is to pay for something called In Vitro Fertilization...whatever that means.
In all of this, just remember, I'm a 5-month old, well actually I'm 5-months and 17 days, so technically I'm like 5 and 1/2 months old, but my point is, don't take it from me. ASK YOUR DOCTOR and then you can proceed making the best decision for yourself & your family based on everything you know and whatever you believe in. As for my mommy & daddy, they are doing everything they can to show me how to live free and enjoy life as it's been given to me. And I think my daddy summed it up best when he whispered in my ear, "Scuttlebutt, your mommy & I love you just the way you are. And always remember, you can live life dying or you can die living life. It's your choice."...whatever that means.
Here's my last few days:
|I opened a birthday gift from a stranger! Thank you I love it!!!|
|The first family sent me a get well soon card & picture.|
I like their smiles and they look good for being the first family ever!
|I got a new stroller from Families of SMA. Don't tell daddy, but|
I think he messed up because there is no radio & it doesn't fly.
|Mommy said she'd get in with me if her legs weren't so long.|
Daddy said ... just know he lost 2 points for his commentary.
|I'm somewhere in there I promise! Oh and|
I love my pinwheel!!!
|Roll it up...pat in the pan...|
|Whoever said getting a tattoo doesn't hurt is a liar!|
|Mommy & daddy had to sedate me after my tattooing.|
|A stranger had a lemonade stand in my honor and sold 3 cups|
for $48! Daddy wants to know what was in that lemonade!
|1,000 smiles :-) Now that's creative!|
5. Mold my hands for mommy & daddy
6. Get my first tattoo
7. Get 1,000 smiles mailed to me
8. Inspire an entire family to work together to help me spread awareness
9. Inspire an entire 5th grade class of my friends to write to me.
Take me out to the ballgame & then whatever I bring to life, because I don't have time to wait for life to bring anything to me.