Saturday, March 23, 2013

Excellent news in the fight against SMA!

Families of SMA and Nationwide Children's hospital have agreed to a 3-year cooperative agreement in the amount of $3,752,462 to help further fund pre-clinical drug development of Dr. Brian Kaspar's Gene Therapy program. 

Press Release from Families of SMA:

If you would like to make a personal contribution towards Dr. Kaspar's Gene Therapy program you may do so through Sophia's Cure Foundation.  Thank you as always for your continued love & support of Avery and all of her SMA friends & their families.

Pictured (from left to right) at Dr. Kaspar's labs in Nationwide Children's Hospital: Avery's friend/donor, Avery's Dad & Mom, Dr. Brian Kaspar, & Sophia's Dad (Vincent Gaynor). 
Please continue to share Avery's story by updating your social networks, e-mailing all of your
contacts, and talking to your friends/co-workers.  
 The more people who are aware of SMA, the less likely future children will be affected by SMA, and the more likely there will be a cure for Avery's friends who already have SMA! 


  1. Very good news, indeed! Always in my heart and prayers, xo

  2. Fantastic news and I can't say it's totally because of Avery that the test was done but I'm watching A Baby Story but a genetic counselor suggested that a couple have the test done early in her pregnancy. Turns out mom was a carrier even though it didn't appear that dad was. Her amnio came back okay but as soon as I heard them mention the test I thought of your daughter and your family and the reach she will continue to have.

  3. This is such wonderful news. I am so happy to see that Avery is continuing her good work. We think of her often.

  4. Yeah!!!!!! Your daddy posted this on my 40th birthday. What great news and a great birthday present! Much love to Avery and mommmy and daddy!
    Cheryl in Missouri

  5. I carried your family in my heart today as you remember your beautiful little girl. Many, many prayers for you and Avery.

    Melissa, Avery's SMAn