Tuesday, December 4, 2012

Update On Dr. Kaspar's Gene Therapy Program

This afternoon, the Recombinant DNA Advisory Committee (RAC) unanimously voted YES to Dr. Kaspar's Gene Therapy program moving forward to the FDA for final approval. This is one HUGE step forward towards curing SMA.

Thank you to everyone who continues to spread awareness about SMA and who has made and continues to make donations in Avery's name towards finding a cure for SMA!  

And a special thank you to the families who attended today's meeting.  You all brought tears to our eyes and hope to our hearts.

Don't forget to share my story by following & forwarding my blog, following me on 
Twitter  (AveryBucketList) and Like Me on Facebook (Averys Bucket List)!  The more people who are aware of SMA, the less likely future children will be diagnosed with SMA, and the more likely there will be a cure for my friends who already have SMA!