Follow the link below for more information about a private screening in Houston, TX of the new Disney/Pixar film "BRAVE". A large portion of the proceeds from tickets sold will be donated towards Avery's Bucket List wish of raising $1,000,000 towards SMA research.
Whatever I bring to life through my mommy, my daddy, and through you.
Don't forget to share my story by following & forwarding my blog, following me on
Twitter (AveryBucketList) and Like Me on Facebook (Averys Bucket List)! The more people who are aware of SMA, the less likely future children will be born with SMA, and the more likely there will be a cure for my friends who already have SMA!
If there's anything you'd like to mail me, you can send it to:
Avery's Bucket List
PO BOX #2849
Bellaire, TX 77402
Thank you again to everyone!
avery! it's so nice to hear from you again! not sure i can make it to texas, but i will for sure share this. i just know that you'll reach your goal, and i can't wait to see another item crossed of of your bucket list. <3ReplyDelete
So wish I could go to events to support Avery and SMA! Pretty far from Indiana though! Is there a way toget a t shirt in honor of Avery?ReplyDelete
Dearest Baby Avery, I cannot come all the way to Texas to see the movie. I live SO far away in Seattle, WA. But I am so inspired by you and your mommy and daddy. I gave $200 to fight SMA and when I have more money I will give more so you can reach your goal of kicking SMA's tail. I was gonna say SMA's something else but I didn't want to say bad words so your mommy and daddy wouldn't ground us both even though I am all grown up and your all the way up in heaven. I just wanted to make sure and be on the safe side. Millions of people love you SO much Avery.ReplyDelete
So good to hear from you Avery:) I check your blog every morning for something new and it always makes me smile when i see a new entry. Your mommy and daddy are doing a great job at keeping your message alive. I'm sure you're very proud. My daughter Reagan is 3 and is super excited to go see the screening of Brave. It's a bonus that we'll be able to help you reach your goal.ReplyDelete
Love from Houston:)
This is awesome!! I live in Austin, but will share with all my friends in Houston! :)ReplyDelete
Wish I could go dear Avery, but I live in California. I did sign up for an SMA walk later this summer. My daughter and I will be walking in your honor. Lots of love to you Angel:)ReplyDelete
That smile still gets me every time...ReplyDelete
Your story has truly inspired me to be a better mother and person. In the information for the movie it said to wear your Avery T-shirt. Just wondering if t-shirts were available and where?ReplyDelete
Love you little Avery! I can't goto the movie, but I bought tix for your friends that would have problems going.ReplyDelete
early life was the birth of a highly awaited and wonderful thing when the side of our waking lifeReplyDelete
Love you, sweet angel! Please tell your daddy Happy Father's Day from the Hess family in Pennsylvania!ReplyDelete
To Avery's family - please know that people out there still care tremendously about your little angel Avery - I will never forget her. And I pray for you for strength and peace. Love to you, sweet Avery, in Heaven!ReplyDelete
Thank you for sharing your beautiful Avery with the world. Thank you for bringing a heightened awareness to this TERRIBLE disease, SMA. I have shared this information with everyone I know, as knowledge is power, especially with SMA. I have two children and had never heard of it before I was linked to your blog via facebook. I truly admire the courage Mike, Laura, Avery and your whole family shows in the face of such a trajedy. Avery will be forever in my heart, as she will in many, many others. Because of your blog, I decided to pursue carrier testing... I figure, it's my body, why shouldn't I know?? I contacted my health insurance company first (BCBS), the person I spoke with had (of course) never heard of SMA or carrier testing. "Why are you being tested? Do you have a family history? Are either of your kids showing signs of this disease?" When I explained that (based on the information I have read, thanks to you) usually there is not a family history of SMA until someone gets it and that approximately 1 in 40 people are carriers, I was then asked for the CPT codes. I then contacted the nurse at my OB/GYN's office. She had also never heard of SMA. She also asked if there was a family history of SMA (reason to show cause for concern). After I explained, she put me on hold and got the codes. I then called my insurance company back and the carrier test is covered (minus any applicable deductible, of course). 45 minutes of time well spent in my eyes. I will have the testing done and take it from there.ReplyDelete
Thank you again for raising awareness regarding SMA. Mike, Laura and family, I wish you peace and happiness for the future.
You always bring a smile to my face Avery. My daughter and I are participating in an SMA Walk and Roll later this summer in your honor. Thanks for being such an inspiration. Lots of love from me and baby Hannah:)ReplyDelete
I still think of you often and check in to see your sweet little face! I'd LOVE to wear one of your T-shirts! Where can I get one?