Wednesday, May 2, 2012
Avery Lynn Canahuati - 11/11/11 - 04/30/12 (quick update)
Please remember, just because Avery is no longer here doesn't mean we can't continue to learn from her. So as Avery would urge you to do at the beginning & end of all her posts...
"Each time I post an update, please share my story by updating your social networks, e-mailing all of your contacts, and talking to your friends/co-workers. And to all my girlfriends out there, tell your Ob/GYN about my story and maybe they'll routinely start offering SMA testing. If we can help save a few of my future friends and their mommy, daddy, and loved ones from SMA, then my life, while cut short in time, will be beyond fulfilling in stature."
Just a quick update to one of Avery's last Bucket List goals...
An anonymous donor will match every dollar donated up to $500,000 to help bring Dr. Kaspar's SMA Gene Therapy program out of the lab and into her SMA friends. Dr. Kaspar's SMA Gene Therapy could cure Avery's friends or at the very least offer advancements towards a cure for them.
Once that goal has been achieved, Avery asks that all future monetary donations be made in her name to Fight SMA (www.fightsma.org).
"We are all born pure & innocent. We can let the world change us, or we can change the world."
Don't forget to share my story by following & forwarding my blog, following me on Twitter (AveryBucketList) and Like Me on Facebook (Averys Bucket List)! While it may or may not help me in my lifetime, the more people who are aware of SMA, the less likely future children will be born with SMA, and the more likely there will one day be a cure for children who already have SMA!