Friday, September 20, 2013

FDAvery Approved!!!


The FDA has approved Dr. Kaspar's Gene Therapy program!  
We would like to say thank you to Dr. Kaspar and his team at Nationwide Children's Hospital, along with Sophia's Cure Foundation and numerous other families of children with SMA for working vigorously towards making this day become a reality.

We would also like to thank everyone who followed and supported Avery and donated to Dr. Kaspar's Gene Therapy program.  We hope you'll take a few minutes today or this weekend to celebrate this accomplishment while continuing to spread awareness about SMA!


Lastly and most importantly in our humbly biased opinion, we would like to give special thanks to our amazing daughter Avery for inspiring us and countless others.  We ever so dearly love you and we will forever miss you.

We will finish this post with an adorable and amazing video from the Gaynor family (Founders of the Sophia's Cure Foundation) announcing the FDA's approval.


Even though Avery is no longer physically with us, please don't forget there's plenty of children and others living with SMA, so please share Avery's story by forwarding her message to your friends & family members!  The more people who are aware of SMA, the less likely future children will be diagnosed with SMA!


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8 comments:

  1. Barbara F.September 20, 2013 at 3:43 PM

    Fabulous news! God bless all involved, especially our Little Angel in Heaven, Avery! xo

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  2. Ashley H.September 20, 2013 at 7:19 PM

    That is amazing!! Congratulations! I'm sure Avery is super happy.

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  3. PJSeptember 21, 2013 at 3:09 AM

    This is such wonderful news! Congratulations! I am sure Avery is incredibly proud!

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  4. Warrior MomSeptember 21, 2013 at 5:36 AM

    This is great news.

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  5. cpennSeptember 21, 2013 at 5:49 AM

    Woohoo!!! That's a huge accomplishment. Thank you for all you've done; this is going to help so many families.

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  6. AnnieSeptember 21, 2013 at 10:16 AM

    Fantastic news!!! Keep up the good work guys. We're in your corner supporting you every step of the way.

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  7. Journey WomanSeptember 28, 2013 at 8:31 PM

    Wonderful news! I am sure Avery is up in heaven beaming with pride at what her amazing parents have done. :)

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  8. chris poulinOctober 1, 2013 at 6:52 AM

    Right on, Mike,Laura and Avery, I am so happy for you guys, your hard work has paid off, it's paved the way for for a lot of families, if there's anything I can do to help or get more involved please,please let me know, your friend from Canada, Chris Poulin, Kelowna BC, God Bless all of you :)

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