Avery's Bucket List

Imagine you've been diagnosed with an incurable genetic disease and you are told you will not only lose your ability to walk and move your arms, but you will die between now and the next 18 months. What would you do? My name is Avery Lynn Canahuati, I'm almost 5 months old, and this has become my reality. But before I die, there's a few things I'd like to accomplish...this is my bucket list and my story. SHARE IT & HELP ME TELL THE WORLD ABOUT SMA!

Tuesday, November 11, 2014

Happy 3rd Birthday Aviator

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HAPPY 3RD BIRTHDAY AVIATOR! Three years ago today on November 11, 2011, you immediately brought so much joy into our lives and into our w...
8 comments:
Saturday, August 2, 2014

August is SMA Awareness Month & the 3rd Annual brAvery Run!

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Please share Avery's story by updating your social networks, e-mailing all of your contacts, talking to your friends/co-workers, and de...
1 comment:
Friday, April 25, 2014

Dr. Kaspar's Clinical Trial is Now Open for Enrollment!

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We are extremely excited to share with everyone that enrollment is now open for Dr. Kaspar's Gene Therapy clinical trial (which your...
6 comments:
Monday, March 10, 2014

Carter (3.5 months Old & Quickly Growing)

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Many of you have sent us messages asking for updates about our family and Avery's little brother Carter.  We want to thank you again t...
9 comments:
Tuesday, December 3, 2013

Avery's Little Brother (Carter Bryant) Born 11/23/13

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Avery officially became a big sister to an SMA-free baby brother on Saturday, November 23, 2013.  We are extremely proud to welcome Carter ...
32 comments:
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