Important Legislative Update

Please continue to share Avery's story by updating your social networks, e-mailing all of your contacts, and talking to your friends/co-workers.   The more people who are aware of SMA, the less likely future children will be affected by SMA, and the more likely there will be a cure for Avery's friends who already have SMA!

The following update is from the FightSMA website:
Legislation to authorize the National Institutes of Health (NIH) to support the creation of up to 20 pediatric research consortia focused on diseases such as spinal muscular atrophy (SMA) passed the U.S. House of Representatives on Wednesday with broad bipartisan support.
The National Pediatric Research Network Act (NPRNA) promises to directly benefit the fight against SMA by supporting collaborative pediatric research including multi-site clinical trials for rare pediatric disorders like SMA.

CLICK HERE TO FINISH READING THIS STORY

Avery laughing upon being released from the hospital after her G-Tube surgery.

You can click here to donate to FightSMA.org

You can click here to donate to Sophia's Cure.

You can also download "Avery's Song" by Randy McLellan for only $0.99 cents using any of the following links and half of the proceeds will be donated to Fight SMA:

Download Avery's Song on Amazon

Download Avery's Song on iTunes

Don't forget to share Avery's story by following & forwarding her blog, following her on 

Twitter  (AveryBucketList) and Like her on Facebook (Averys Bucket List)!  The more people who are aware of SMA, the less likely future children will be affected by SMA, and the more likely there will be a cure for Avery's friends who already have SMA!

http://www.facebook.com/AverysBucketList

https://twitter.com/#!/AveryBucketList

If there's anything you'd like to mail, you can send it to:

Avery's Bucket List

PO BOX #2849

Bellaire, TX 77402