Tuesday, August 14, 2012

A Day For Avery (Quite the Ending To an Amazing Game!)

Please continue to share Avery's story by updating your social networks, e-mailing all of your contacts, and talking to your friends/co-workers.   The more people who are aware of SMA, the less likely future children will be affected by SMA, and the more likely there will be a cure for Avery's friends who already have SMA! 

Last night the Sugar Land Skeeters went all out in honoring Avery with “A Day for Avery”.  They had a heart wrenching video montage of Avery they showed before the game, videos about SMA & Avery's story in between innings, a balloon release for Avery, t-shirts & wristbands for sale, and they wore special Avery game day jerseys (see below), which they auctioned off during the game.  So far they've raised over $14,000 with all proceeds being donated to Sophia's Cure.

This custom golf cart was donated by one of
Avery's SMAn's and is being auctioned off.
200 T-Shirts were donated and sold for $15
inside the Skeeters Fan Shop.  They sold out
and immediately had requests for more.

Octavio Martinez, Avery's catcher, who after Avery
 passed away inscribed Avery's initials, her birth date,
date of passing, and R.I.P. on his cap.
Thank you Davis family and all other families
who bid on a jersey and supported a cure for SMA!

Lastly, thank you to the Sugar Land Skeeters for everything and for all of the memories from Avery's first pitch and from last night.  We appreciate everyone who attended the game last night in honor of Avery and in support of SMA Awareness and funding for a cure.  Among the people in attendance last night, were many of Avery's SMAn's and family members, along with Nancy Burford (Avery's speech pathologist), Dr. Paul Minifee (Avery's glam-tube surgeon), Dr. Nancy Glass (Avery's anesthesiologist), and last but certainly not least, Savannah, one of Avery's friends came with her mommy & family.

Avery's friend Savannah with her family and
the Skeeters mascots.
Avery's SMAn's since Day 1.

Oh and in case you're wondering about the outcome of the game,  the Skeeters won 4-3 in the 11th inning when the opposing pitcher uncorked a wild pitch while trying to intentionally walk the Skeeters' Ofilio Castro who happens to wear number 11.  Considering Avery's birth date was 11/11/11, this brought chills and smiles to us all at the same time.

We miss you, we love you, and thank you for forever being with us.
Don't forget to share Avery's story by following & forwarding her blog, following her on 
Twitter  (AveryBucketList) and Like her on Facebook (Averys Bucket List)!  The more people who are aware of SMA, the less likely future children will be affected by SMA, and the more likely there will be a cure for Avery's friends who already have SMA!

If there's anything you'd like to mail, you can send it to:

Avery's Bucket List
PO BOX #2849
Bellaire, TX 77402


  1. I wish I could have been there! Is there any way to order a t-shirt? I've never met you guys, but my heart is full of love and hope for you. Even though I live in Indianapolis, I'm now a Skeeter fan for life!

  2. Avery story just breaks my heart and also touched it in many ways. We would like to order shirts can you tell ya how? Hope to make a Avery day here in Wisconsin:) God bless

  3. What a night it was, and what an incredible ending to the game. Avery is still very much with us all. I miss that baby girl's pretty smile! We are so thankful to have been a part of such a wonderful night, and we will forever fight for a cure for SMA. Way to go Skeeter's!

    It was so great to finally meet you and Laura. You both were so kind and inviting. I'm always thinking of you all. Until next time...

  4. Thank you so much for sharing Avery's story!!! I found out I was pregnant in June and one of the first things i told my OB was to PLEASE test me for SMA, she told me that it was already a test that she insisted parents take. If it wasn't for your family I wouldn't have known to ask.

    Thank you for everything you do!!

  5. Sounds like it was a great night. Forgot to buy my ticket online but I did sign up for the virtual 5K. Hope the 5K as much fun as the other events have looked. This is a great legacy your family is leaving.

  6. One of Avery's newest Bucket List goals is to help raise the remaining $365,000 (out of $1 million) needed to bring Dr. Kaspar's SMA Gene Therapy program out of the lab and into her SMA friends. Dr. Kaspar's SMA Gene Therapy could cure Avery's friends or at the very least offer advancements towards a cure for them.site

  7. So nice of you to keep her blog going. I think of your daughter often. Many blessings, Amy from Tyndall, South Dakota