tag:blogger.com,1999:blog-9188356437468688857.post8886993547156216153..comments2024-02-02T08:45:57.743-08:00Comments on Avery's Bucket List: My First Kiss and...Who Cares About Other Stuff, A Boy Kissed Me!AveryCanhttp://www.blogger.com/profile/04114885815609492616noreply@blogger.comBlogger48125tag:blogger.com,1999:blog-9188356437468688857.post-57480750233247448362012-05-05T21:49:05.472-07:002012-05-05T21:49:05.472-07:00God Bless You All!God Bless You All!tabatha bowdoinhttps://www.blogger.com/profile/01881603640829839080noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-86012479493511071622012-05-03T23:32:28.734-07:002012-05-03T23:32:28.734-07:00Hello My name is Tina my best friend of 26 years s...Hello My name is Tina my best friend of 26 years sent this blog to me and when I read it I felt I should write something. I'm so saddened from your loss, I have a great understanding of what it's like because I too have Muscular Dystrophy Spinal Muscular Atrophy type 2. The difference is that I am 32 years old, but I do know almost to well about the bucket list I found I grew up fast because I wanted to try and experience as much as I possibly could. I was told a lot of the same things about not walking and breathing would be an issue and lung infections would be an on going problem and that I would not live to be 2 years old.All types of M.D are very terrifying diseases, the progression of the deterioration can be slow or very rapid.I send you strength and love again I'm so sorry for your loss and at the same time I am gladden for peoples gain learning about SMA. Best wishes to your family and god bless. <br /><br />Toronto Ontario CanadaTinahttps://www.blogger.com/profile/14316690098354153127noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-23615990334071356082012-05-03T16:58:19.630-07:002012-05-03T16:58:19.630-07:00I have to go out of this beautiful blog i cant sto...I have to go out of this beautiful blog i cant stop crying... :'(God's daughterhttps://www.blogger.com/profile/00934840577174642980noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-2945794403422810202012-05-01T13:39:12.128-07:002012-05-01T13:39:12.128-07:00My heart goes out to your family baby girl. May t...My heart goes out to your family baby girl. May they be blessed with peace. I was in tears reading clips of your blog and you are truly an angel.Cali-delightshttps://www.blogger.com/profile/10490707792157192150noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-16229358878148756322012-04-30T22:00:38.921-07:002012-04-30T22:00:38.921-07:00Hi Avery,
Love your blog!
I wanted to let you kno...Hi Avery,<br /><br />Love your blog!<br />I wanted to let you know I donated $25 to fight SMA after reading your story, so you can keep track of reaching your goal of raising $1M.<br /><br />Good luck and keep up the great work!Unknownhttps://www.blogger.com/profile/14060447989285924196noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-76646595702667191222012-04-30T20:56:46.330-07:002012-04-30T20:56:46.330-07:00Darling Avery, you are such a beautiful soul. You ...Darling Avery, you are such a beautiful soul. You have hardly arrived here on Earth and you are spreading so much love all around the World.I'm writing to you from Nova Scotia, Canada and wanted to tell you how wonderful and powerful you are. Also wanted to mention a name to your amazing parents, Dolores Cannon. (all we need is love) Lots and lots of love, Andrea xoxoAndreahttps://www.blogger.com/profile/10179050411498676919noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-30222458703108728022012-04-30T20:21:02.435-07:002012-04-30T20:21:02.435-07:00Hi Avery, my name is Eileen and I am grandmother t...Hi Avery, my name is Eileen and I am grandmother to Noah Spencer, MDA"S Goodwill Ambassador for the state of Arizona and also afflicted with SMA,he wasn't expected to make it to 10 years old but is now an old man of almost 14, I also have a nephew Dustin Graham with SMA and he is 24. <br />I think your bucket list should include a trip to where I live Tombstone Arizona home of the famous OK Corral Gunfight. Get your picture taken with a cowboy, a stagecoach, at the Boothill Graveyard and of course with me. Keep smiling baby!Eileenhttps://www.blogger.com/profile/09608664182026027834noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-54499326623098013792012-04-30T18:36:52.047-07:002012-04-30T18:36:52.047-07:00Go to the circus.Go to the circus.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-30305216895167030182012-04-30T13:03:00.718-07:002012-04-30T13:03:00.718-07:00I will pray for you everyday Avery. God loves you,...I will pray for you everyday Avery. God loves you, and no matter what doctors say you can be healed little one. Thank you for showing so many people how important and precious each life is and for raising awareness for SMA. Praying.John Floreshttps://www.blogger.com/profile/06625763032832336311noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-18360271204795764612012-04-30T07:17:08.111-07:002012-04-30T07:17:08.111-07:00Like to add Sleigh Ride in the snow on Christmas e...Like to add Sleigh Ride in the snow on Christmas eve with all the lights on, on Avery's bucket list.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-37997170735523040042012-04-30T01:48:21.288-07:002012-04-30T01:48:21.288-07:00Hello, Miss Avery,
I'm very pleased to meet y...Hello, Miss Avery, <br />I'm very pleased to meet you via your blog and your enthralling adventures. I'm a grown-up now so I have to act like one and so don't get to have all the fun and magic that you do so, if you don't mind, I'll just live vicariously through you.<br /><br />I don't know if I missed it on your bucket list or if it's not there but if not you should add "Write a book" to your list. You're much more interesting and articulate than most authors and infinitely more fun.<br /><br />Also, have you ever heard of a website called "GoodSearch.com"? It's a very cool site where you can list your charity so that every time someone needs to do an on-line search they can do it through GoodSearch AND for each search a small donation is made to your charity. How cool is THAT? Just by doing what they would do anyway the SMA people would get money. WOOO HOOO!<br /><br />Thank you, darling Avery, I'm a disabled veteran but you have made my dark places not so dark.<br /><br />XXXOOO those are hot pink kisses and bright purple hugs.<br /><br />BeciAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-25654675037991673282012-04-29T23:06:07.984-07:002012-04-29T23:06:07.984-07:00Monday, April 30, 2012 [ 1:41:00 AM ]
Thank You ...Monday, April 30, 2012 [ 1:41:00 AM ]<br /><br />Thank You for Your Order!<br />Scientists around the world are receiving tremendous insight into the mysteries of SMA. This revelation is possible because you continue to stand with us and with them and with families everywhere. Our fight is not just for these brave children, but for all neurodegenerative disease. Because of the genetic mysteries that SMA research is revealing, disease efforts for Alzheimer's, Parkinson's, and ALS (Lou Gehrig’s Disease) will be advanced. The fight to defeat SMA, a childhood crippler and killer, encompasses our world. Your generous gift will help us to continue to leverage larger dollars from other sources such as the National Institutes of Health. On Capitol Hill, we are building support daily for the SMA Treatment Acceleration Act. When it is passed, this bill will dramatically increase NIH funding for SMA research. Please let your voice be heard and encourage your friends to visit www.fightsma.org and click the tab titled "Winning in Washington." For over 20 years, FightSMA has worked to build community and to support committed and extraordinary scientists. This life-saving SMA science is propelled by your support. Because of your generosity we can also share Fighter Mom, our women's advocacy program. Any mom fighting any childhood disease or health condition is equipped to be an advocate for her child in every sector. Powerful understanding of SMA is energizing our community as never before. We have come a great distance because of your support and we know that the end is in sight. Warm wishes, Martha Slay President, FightSMA<br /><br /><br /><br />Order Detail<br />Item Name Price Tax Deductible Quantity Total<br />Donate to FightSMA<br />Thank you so much for contributing to the fight against spinal muscular atrophy (SMA). $ 25.00 $ 25.00 1 $ 25.00<br /><br /><br />Total $ 25.00Tracy Leehttps://www.blogger.com/profile/17180417966093444336noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-37146227866136036272012-04-29T19:22:36.859-07:002012-04-29T19:22:36.859-07:00I will keep you in my prayersI will keep you in my prayersTomhttps://www.blogger.com/profile/18189201009360394410noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-34118167203306444442012-04-29T19:09:26.455-07:002012-04-29T19:09:26.455-07:00Beautiful, brave little girl! Mommy & daddy l...Beautiful, brave little girl! Mommy & daddy love you so much and they should be commended for trying to help others even though their plate is full. You are wonderful, mommy and Avery is a lucky little sweetheart to have you doing everything possible to help save her life. Your family is in my prayers. God bless you, Sweet baby, girl!!! xoxo (from Savannah, GA)Diannehttps://www.blogger.com/profile/05222244648464662968noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-71119579384436777892012-04-29T16:58:09.940-07:002012-04-29T16:58:09.940-07:00Hi Avery! I just started reading the blog after a ...Hi Avery! I just started reading the blog after a friend of mine posted it on facebook. I just wanted to say what an amazing family you have and the amazing story of life that is unfolding for everybody involved. I love the whole bucket list idea, and as an aunt that has recently lost two nieces to a genetic disease (Holoprosencephaly) at the ages of 18 and 14 months, I really feel as if this is what everyone is supposed to do in this world....live life to the fullest. You are such a beautiful girl and the love that your family shows is simply remarkable....thank you for sharing your story and bringing awareness to SMA and genetic disorders in general.Courtneyhttps://www.blogger.com/profile/03453265839738015946noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-24632881714661686482012-04-29T12:59:33.684-07:002012-04-29T12:59:33.684-07:00Couldn't have said it better myself, thank you...Couldn't have said it better myself, thank you Gwen--hearts all around!<br />Love, love, love,<br />BAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-40039771047668620792012-04-28T19:01:49.930-07:002012-04-28T19:01:49.930-07:00Hi Avery! I am so glad you have such wonderful pa...Hi Avery! I am so glad you have such wonderful parents who are enjoying every minute of your life and helping you enjoy yours. I hope you get to try a swim in the ocean, stare at stars at night, go to a dance party....I bet you will. You are a beautiful young lady and an inspiration who has opened my eyes to the fact that we are all lucky to have one breath in this world....I am sending you lots of love, warmth and hugs girlfriend!<br />xoxoxoxoGwenhttps://www.blogger.com/profile/01450482144803295656noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-44061750605257564472012-04-27T23:40:36.775-07:002012-04-27T23:40:36.775-07:00Baby Avery you have touched my heart! I pray God c...Baby Avery you have touched my heart! I pray God continues to grant you and your family strength and peace that passes all understanding. I have to admit I'm a little jealous because I didnt get my first kiss until I was 16 :-) Your story inspires me to be the best mom I can be and I will share your story with my family and friends to help more people become aware of SMA. God Bless you Sweet Baby!Mrs Mira Polionhttps://www.blogger.com/profile/08120657520805421096noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-56489846610310593472012-04-27T23:01:13.728-07:002012-04-27T23:01:13.728-07:00Avery Lynn,
How adorable you are. I had a Christin...Avery Lynn,<br />How adorable you are. I had a Christina Lynn who died in a car accident at 21 while a student at San Diego State in 1991. We have a surviving daughter, Christina's younger sister, Michelle Lynn who is 37 now. Life is about the quality not quantity. We know that more then most. So keep on having fun doing all these nice and fun things with your Mommy and Daddy and family and friends. It will bring them joy and wonderful memories.PAULhttps://www.blogger.com/profile/15465978577246489104noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-74637409689011909002012-04-27T18:19:57.847-07:002012-04-27T18:19:57.847-07:00Reading this made me think of my childhood and wha...Reading this made me think of my childhood and what I did that was so fun so I wanted to add to your bucket list. Be dressed as a princess in Disney land and go to disney land! beach, go out in the rain and put your feet in the wet grass, tea party! every girl must have one! wear a beautiful dress for no particular reason, ride a bike, go to the movies, go on a date, put on makeup. will write back if I think of more!!! I have 3 children, one of which is a little girl like you! Her name is Isabella and she is 3-1/2 yrs old. She loves dressing up and putting on makeup and of course tea parties!! At 32 I havent even accomplished the most important thing in life as you have! You are putting others first and making a life effort to help others and that is the best accomplishment a life can have. I am proud of you and your parents and wish you all the best and hope God walks along side you and keeps you strong and following this list! have fun!! Let me know when you have that tea party!!Sarahchttps://www.blogger.com/profile/18015426853321196840noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-7921937405218776792012-04-27T17:32:52.089-07:002012-04-27T17:32:52.089-07:00Sweet, sweet baby Avery. How much joy you are bri...Sweet, sweet baby Avery. How much joy you are bringing, compassion too. I look forwrd to hearing of more of your adventures with mommy and daddy. Thanks for sharing the bliss of your sweet life. I have a son, now grown. YOur story makes me love him more and his 2 sweet children. Thanks Avery. EileenEileenhttps://www.blogger.com/profile/05820013424615041410noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-66281721889350384092012-04-18T19:49:57.141-07:002012-04-18T19:49:57.141-07:00Mom and Dad, you inspire me! And Avery is so adora...Mom and Dad, you inspire me! And Avery is so adorable. I want you to know I'm naming my little girl Avery, I can already see how strong she is, such a brave little girl.<br />-expecting momAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-26453068230931942342012-04-16T15:23:29.567-07:002012-04-16T15:23:29.567-07:00If there were a list of reasons to put a ring on i...If there were a list of reasons to put a ring on it, having Avery for the flower girl is at the top!!! :)Anonymoushttps://www.blogger.com/profile/07139674170899501598noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-61433209743096393672012-04-15T08:32:39.902-07:002012-04-15T08:32:39.902-07:00You're reaching a lot of people here in Maine ...You're reaching a lot of people here in Maine apparently! I'm not too far away from Kate and Avery in Yarmouth!<br /><br />Anyway, you should add trip to Maine to your bucket list. Or since your daddy apparently likes Cool Runnings, you should add bobsledding to your list! I had the opportunity to go for a bobsled ride in college, and it was AMAZING. I'm sure your daddy would go with you!Moniquehttps://www.blogger.com/profile/13262520717631980098noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-34112365575251541262012-04-14T14:19:33.489-07:002012-04-14T14:19:33.489-07:00Oh sweet Avery! I stumbled across your blog and I...Oh sweet Avery! I stumbled across your blog and I am so glad that I did! You are amazing! On February 16th I gave birth to my daughter...Avery Morgan. She is the most incredible gift I've ever been blessed with. I wish we lived closer so we ccould give you a big squeeze and help you cross something off your bucket list. We will be praying for you everyday and will share your story as often as possible. You have made me want to be a better mother and person. Life is too short. Here is a long distance hug and butterfly kisses from my Avery to you. Love, Kate and Avery in Yarmouth MaineKatehttps://www.blogger.com/profile/12404208689760389895noreply@blogger.com