tag:blogger.com,1999:blog-9188356437468688857.post418023857425354688..comments2024-02-02T08:45:57.743-08:00Comments on Avery's Bucket List: Dear Ellen, I need your help...AveryCanhttp://www.blogger.com/profile/04114885815609492616noreply@blogger.comBlogger110125tag:blogger.com,1999:blog-9188356437468688857.post-19610220471887514742012-05-01T21:40:03.748-07:002012-05-01T21:40:03.748-07:00I know you weren't able to check this off your...I know you weren't able to check this off your list yourself, but maybe Ellen can have a special dance for you and we can get enough money raised to reach another bucket list goal! What an impact your story has made on so many people! Such a sweet little girl! R.I.P.TravNStephhttps://www.blogger.com/profile/17265368485518775630noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-85580279202728425102012-05-01T20:12:16.897-07:002012-05-01T20:12:16.897-07:00I think today is even more important than ever bef...I think today is even more important than ever before and I have also messaged Ellen in the hopes that your parents can fulfill this bucket list item for you. <br /><br />Rest well, Sweet Angel. Mommy and Daddy will make you proud! <br /><br />Daddy (and Mommy) - What you have done. The example you have met...and this blog, a culmination of your work is nothing short of admirable and amazing. I hope you can find the strength to continue in your own words. You are in my hearts this evening and always.mommyontheedgehttps://www.blogger.com/profile/02100160140788885873noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-55497689281391287102012-05-01T20:01:08.353-07:002012-05-01T20:01:08.353-07:00Tweeted, posted on her Facebook wall (as I've ...Tweeted, posted on her Facebook wall (as I've noticed MANY people have done) & contacted through her website. How she can not notice will be beyond me. I hope to see your family on her show soon. I admire you so much!! R.I.P. I'm so happy you got to experience so much in the time you were here. When your parents finally dance with Ellen, I know that you will be there dancing with them.MentalMamahttps://www.blogger.com/profile/08089423784726052085noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-41887624811335938562012-05-01T19:46:14.615-07:002012-05-01T19:46:14.615-07:00Even though you are now watching over your family ...Even though you are now watching over your family and friends and won't be able to check this off your list, I to have posted on Ellen's FB page with your link. I hope your parents are able to check this off your list and are able to tell your story to her and spread the word even more about SMA, more people need to know. Your parents are incredibly strong and are truly an inspiration to a lot of parents who have children that are dealing with SMA or any other type of disease/illness or disability. May you rest in peace.Sarahttps://www.blogger.com/profile/11392200883101528517noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-37716682022624611422012-05-01T19:05:23.773-07:002012-05-01T19:05:23.773-07:00Oh my goodness! I had NO idea this is what was goi...Oh my goodness! I had NO idea this is what was going on today, but after reading Avery's bucket list, and had noticed she wanted to meet Ellen and spread the word, I decided to do just that! I am so happy I have been able to help you and your precious daughter Avery! <br />I am so sorry for your loss. May God be with you and your loved ones at this time.<br />Just know Avery is up above dancing around and running being looked after by her loved ones. She is watching her wonderful parents down below, waiting for the day until you can all meet again!Vanessahttps://www.blogger.com/profile/08072385018840986024noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-12828038041869305562012-05-01T13:36:49.296-07:002012-05-01T13:36:49.296-07:00I have messaged Ellen - I am so sad that you were ...I have messaged Ellen - I am so sad that you were not able to personally check this off your list - but I hope your parents will be able to dance in your honor with Ellen!Sister Airhttps://www.blogger.com/profile/01650032264645942431noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-42879420140968556302012-05-01T13:24:01.642-07:002012-05-01T13:24:01.642-07:00Even though you have left to meet your friends in ...Even though you have left to meet your friends in Heaven - I still posted on Ellen's facebook page to have your parents be on the show so that they can share your story, cross this off the bucket list for you, and to spread the word about SMA. I work in a Children's Hospital in California and I see SMA regularly and support the parents through the difficult diagnosis and the unknowns of this condition. You are in my thoughts and my prayers. I know that your parents will love you forever and will cherish the memories until them meet you again.DeEttahttps://www.blogger.com/profile/06397273020540836857noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-64279558881670786732012-05-01T13:02:08.331-07:002012-05-01T13:02:08.331-07:00Little Avery - I found you through another SMA gir...Little Avery - I found you through another SMA girl - Sofia - and just spent the last hour reading through everything on your blog. I also contacted Ellen today in your honor. Though you're no longer with us here on earth, I know up in Heaven you're still hoping everyone floods Ellen with your story, as am I. Your short life has made such an impact on people, awareness for SMA, and will continue to do so for many, many more years. Keeping your mommy &daddy, family, friends, and all of your SMAans in prayers. God bless you sweet Angel!Robin Martinhttps://www.blogger.com/profile/13986410646232905615noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-3023285178256701882012-05-01T13:00:02.545-07:002012-05-01T13:00:02.545-07:00This is so sad! I hope you guys are ok! Keeping yo...This is so sad! I hope you guys are ok! Keeping you in our prayers! :)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-91104528910953005612012-05-01T07:32:03.826-07:002012-05-01T07:32:03.826-07:00I just started reading your blog today! Even thoug...I just started reading your blog today! Even though today is MAY 1ST i still tweeted and i hope to see you on the show today i am going to be watching for your pretty little face!! I didn't even know about SM A so i am very thankful that i found your blog now i can make myself more aware!k.arcadipanehttps://www.blogger.com/profile/03401218656537982059noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-61335857748491222462012-05-01T07:30:01.561-07:002012-05-01T07:30:01.561-07:00It's not about feeling sorry for themselves it...It's not about feeling sorry for themselves its about them getting the word out, Its not about getting free trips its about doing stuff with their daughter that they won't be able to do because of the short life she will live. So please don't come on here and try and make these people look bad come on here and get awareness for families. Just like in your post you talk about you and your daughter are you looking for sympathy or are you bring people aware of your situation. Let this family live there life in happiness if this is how they want to spend time with THEIR baby girl then let them do so don't talk negative about. Its not about if they knew they wouldn't have had her. you can tell they are very blessed to have this baby girl. Its about not putting her through something,letting their baby feel any pain just as any mother or father would be like. I enjoy following along with her and living these things with her reading her stories and even sharing them all because of this little girl and her mother and father more awareness will be brought to SMA!!! you are a beautiful little girl Avery and you have a wonderful family!! Don't bring something Negative out of something so Beautiful.k.arcadipanehttps://www.blogger.com/profile/03401218656537982059noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-61104774940901958092012-05-01T07:08:28.334-07:002012-05-01T07:08:28.334-07:00Hey beautiful girl! I just emailed Ellen. Hope you...Hey beautiful girl! I just emailed Ellen. Hope you get a chance to spread SMA awareness on the Ellen DeGeneres show!nmccoolhttps://www.blogger.com/profile/13085301632368025611noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-35089592323806139952012-05-01T06:29:53.233-07:002012-05-01T06:29:53.233-07:00http://averycan.blogspot.com/#.T5s89NyJp7A.faceboo...http://averycan.blogspot.com/#.T5s89NyJp7A.facebook?m=1 Ellen, I'm hoping you have been bombarded by messages about this amazing little angel's story. very has something called Spinal Muscular Atrophy or SMA. It is a disease of the muscles that will most likely in the long run make her lose her precious live far before she should. The site I posted is her blog where she tells about her disease and how she is living life to the fullest. I would love to see her on your show as 1. It would get the word out about SMA and SMA carrier testing as well as 2. Avery coukd mark it off her bucket list. Please consider this beautiful inspiring angel. Thanks Brianna. Miss Avery this is what i wrote I hope it helps. Love from me and HarrisonHarrison's Mommyhttps://www.blogger.com/profile/15932959754855211027noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-80559683127408717022012-05-01T05:59:18.295-07:002012-05-01T05:59:18.295-07:00Just sent off my email to Ellen!! Good luck Avery!...Just sent off my email to Ellen!! Good luck Avery!! You and your family are quite amazing. Sending you lot's of support from NY.Elizabethhttps://www.blogger.com/profile/15161598188589761668noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-86617116513701839492012-04-30T23:18:32.945-07:002012-04-30T23:18:32.945-07:00I just sent your story through Ellen's website...I just sent your story through Ellen's website using the link you provided. Thanks for making it so easy. <br /><br />I think you would be a super-fabulous guest and Ellen would be lucky to have you and your parents on her show.Kate Marie Wintzhttps://www.blogger.com/profile/18158622821436202772noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-73538339451260542592012-04-30T23:10:42.086-07:002012-04-30T23:10:42.086-07:00Sweet Avery,
I don't know you but I could not...Sweet Avery,<br /><br />I don't know you but I could not read your story without tearing up.<br />Your parents are amazingly strong. I posted your request on Ellen's website. Fingers crossed!!!!<br /><br />Your precious life has and will continue to make a difference and bring awareness.nadishahttps://www.blogger.com/profile/03127419547280829137noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-4114961943041071162012-04-30T22:30:32.000-07:002012-04-30T22:30:32.000-07:00Sat through and read the whole blog today. Absolut...Sat through and read the whole blog today. Absolutely beautiful, and I'm very touched. Lots of love and luck from PA <3Samihttps://www.blogger.com/profile/16604566622284736536noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-88586311679566505182012-04-30T21:33:56.141-07:002012-04-30T21:33:56.141-07:00POSTED messages on all Ellen area's, BABY AVER...POSTED messages on all Ellen area's, BABY AVERY ELLEN'S DAY!!! YOU HAVE ALL OF OUR LOVE AND SUPPORT HERE IN FLORIDA!!! : )Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-34625954162604248142012-04-30T21:07:12.661-07:002012-04-30T21:07:12.661-07:00Hello Avery my lovely Angel - I was touched like s...Hello Avery my lovely Angel - I was touched like so many others by your blog and your amazing parents. I had never heard of SMA either but will make sure that those around me hear about it now. I wanted to be the first to get to Ellen on May 1 so I just emailed all your information to her letting her know how special and inspiring you are.<br /><br />I enjoy reading your blog and congratulate you on having an amazing bucket list of accomplishments! Thank you so much for sharing your incredible life with us - <br />God Bless<br />RhondaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-92077747616832854942012-04-30T19:43:52.572-07:002012-04-30T19:43:52.572-07:00Done, all the way from Australia!Done, all the way from Australia!Leyrehttps://www.blogger.com/profile/15341355337122911702noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-46757540673179590732012-04-30T19:37:41.189-07:002012-04-30T19:37:41.189-07:00To Lil Miss Avery,
You are a very strong little g...To Lil Miss Avery,<br /><br />You are a very strong little girl!! Definitely a fighter!!! Your story has touched me so much!! I'm in the process of going back to get my Certificate in Radiology so hopefully one day, I will be able to help mommy's & daddy's and their lil peanuts!! I hope you continue your journey & live a long, long happy life!! keep smiling girlfriend!!! You should add a trip to Jersey on your bucket list & dont forget the Jersey Shore ... if you ever make it up this way - i'd be honored to meet you!!! xoxo Ginagiina_elizabethhttps://www.blogger.com/profile/07766275751987773089noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-15485046431220078982012-04-30T19:22:28.879-07:002012-04-30T19:22:28.879-07:00Hello Avery,
First, thank you for sharing your li...Hello Avery,<br /><br />First, thank you for sharing your life with all of us. I've been reading your adventures and sharing it with my girls who are now all grown up and also with my friends. I've sent Ellen your story and beautiful picture. I hope you get on real soon. Good Luck and God Bless you and your family.wander1107https://www.blogger.com/profile/03762194205208347103noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-9043200502426886352012-04-30T17:40:40.846-07:002012-04-30T17:40:40.846-07:00Hi Avery!
My Journalism class has been thinking o...Hi Avery! <br />My Journalism class has been thinking of all different ways that we can help you! A few of us have been e-mailing Ellen and will continue too! You are such an inspiration that I know she will put you on the show! <br />God Bless!<br />Love MartiAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-2669704018258718642012-04-30T14:50:24.451-07:002012-04-30T14:50:24.451-07:00Hi Avery,
You and your family are truly amazing. ...Hi Avery,<br /><br />You and your family are truly amazing. I sent something to your PO box so that you can cross 1 more thing off your bucket list. Stay strong beautiful girl.<br /><br />"Every great dream begins with a dreamer. Always remember, you have within you the strength, the patience, and the passion to reach for the stars to change the world. Believe with all of your heart that you will do what you were made to do."<br /><br />Linda<br />Kingwood, TxAnonhttps://www.blogger.com/profile/01938725739909369861noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-62930504852645112812012-04-30T13:02:10.441-07:002012-04-30T13:02:10.441-07:00I have started following you and I am catching mys...I have started following you and I am catching myself up on previous blogs in order to stay informed! Sometimes I'm crying really hard but just as it gets to the point that my heart is breaking, you make me laugh so hard!! Words cannot express what an inspiration you and you family are to me. Tonight I will sit my three teenagers down and share your story. I have already shared it with anyone I have had a conversation with in the past 24 hours, and I will continue. I just wanted you to know that I did the Ellen thing and it took 4 minutes!! You made it simple and she's my favorite too, so I have hopes that she will listen!! I plan on adding to Averys list ;)<br /><br />God Bless you!!<br /><br />SuzanneSuzannehttps://www.blogger.com/profile/11782064288016123847noreply@blogger.com