tag:blogger.com,1999:blog-9188356437468688857.post141280728234703042..comments2024-02-02T08:45:57.743-08:00Comments on Avery's Bucket List: Avery Lynn Canahuati - 11/11/11 - 04/30/12 (quick update)AveryCanhttp://www.blogger.com/profile/04114885815609492616noreply@blogger.comBlogger183125tag:blogger.com,1999:blog-9188356437468688857.post-68463656570362922672012-05-31T20:49:00.157-07:002012-05-31T20:49:00.157-07:00i have been reading averys list from the begging o...i have been reading averys list from the begging only stopping to give birth to my daughter.I named her Avery. your child has touched so many ppl it is nice to know we are all still one thing parents protecting our children.Anonymoushttps://www.blogger.com/profile/00440156328541418134noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-43303672739830079272012-05-09T08:10:44.006-07:002012-05-09T08:10:44.006-07:00I am so sorry for your loss. You are great parents...I am so sorry for your loss. You are great parents and I thank you for raising awareness of SMA. My boyfriend and I are planning on getting married soon, and when we eventually decide to have children, I will be sure to make the doctors check for the SMA gene in both of us. I don't think I would have been able to handle this as well as you. You are all an inspiration, especially little Avery. God Bless You. God Bless Avery.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-3743040292731367752012-05-06T01:02:35.062-07:002012-05-06T01:02:35.062-07:00I also want to add, that although I am extremely s...I also want to add, that although I am extremely sad to learn that Avery passed away so unexpectedly ... I am happy to know that she did not have to suffer through the debilitating process of this horrible disease. Not that this negates the tremendous grief I feel, in brevity of her time on earth.Ahttps://www.blogger.com/profile/17934064895037819840noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-41879933204701492722012-05-06T00:23:20.715-07:002012-05-06T00:23:20.715-07:00God knew exactly what he was doing when he placed ...God knew exactly what he was doing when he placed Avery in your care. He chose the most special parents he could find, to love and nurture this sweet baby. I'm not sure you realize how extraordinary you are. I don't know how you've turned what would devastate most of us, into a warm, enchanting tale, of triumph over adversity. <br /><br />But, what you have done, most of us, will never achieve in a lifetime, having lived many decades of earth. You shared with the world, at your most vulnerable time. A time when grief, anger, and disbelief, would overshadow any possible altruistic thoughts. You gave a face to a horrible disease. You took SMA from obscurity, to front page International headlines, making news all over the world. <br /><br />Of course it helps that Avery's smile could illuminate the NY skyline. And that she just might be the most adorable baby, ever. We all fell in love with your amazingly beautiful, bundle of joy. How brilliant, that through your blog you have raised such awareness. Because of this, Avery will live on for many, many years. And SMA will no longer a disease, most of us had never heard of.Ahttps://www.blogger.com/profile/17934064895037819840noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-36093356431182295482012-05-05T21:25:57.035-07:002012-05-05T21:25:57.035-07:00This has been one of the most touching life storie...This has been one of the most touching life stories I have ever read. My heart breaks for all of Avery's friends and family. May the amazing memories of Avery bring you comfort during your times of sorrow. She and you both are truly an inspiration. I will share SMA to all that I can. Thank you for sharing your life events in order to bring awareness.Breannahttps://www.blogger.com/profile/05397083422820035408noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-8398829936306921262012-05-05T10:57:00.926-07:002012-05-05T10:57:00.926-07:00It is hard to find the words to express how beauti...It is hard to find the words to express how beautiful Avery and her parents are. You are brave and what you have done here really has changed the world. God bless you.Unknownhttps://www.blogger.com/profile/07867200815992632058noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-28689890237939595832012-05-05T09:28:03.340-07:002012-05-05T09:28:03.340-07:00God bless you, and keep hope that Avery is happy w...God bless you, and keep hope that Avery is happy whit The Lord.M. en A. Noé Chávez Hernándezhttps://www.blogger.com/profile/18198404441771468712noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-25011258240337369682012-05-05T05:24:20.789-07:002012-05-05T05:24:20.789-07:00Dear Parents of Avery
I'm from Argentina, and...Dear Parents of Avery<br /><br />I'm from Argentina, and I am the father of a teenager, I heard the news of his daughter, and I would bring you my love and tell them that you are the most wonderful parents and I met his daughter will always be his angel. Love was born with Avery should not ever let it die, and I hope to continue looking for another child that you can provide so much love and are an example and inspiration for many parents. From here I send a prayer to find the strength to continue the work which is the most wonderful family.<br />hugs Walter VazquezWalter Vazquezhttps://www.blogger.com/profile/01863679461742953423noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-52220108649929308622012-05-05T05:23:19.606-07:002012-05-05T05:23:19.606-07:00Dear Parents of Avery
I'm from Argentina, and...Dear Parents of Avery<br /><br />I'm from Argentina, and I am the father of a teenager, I heard the news of his daughter, and I would bring you my love and tell them that you are the most wonderful parents and I met his daughter will always be his angel. Love was born with Avery should not ever let it die, and I hope to continue looking for another child that you can provide so much love and are an example and inspiration for many parents. From here I send a prayer to find the strength to continue the work which is the most wonderful family.<br />hugs WalterWalter Vazquezhttps://www.blogger.com/profile/01863679461742953423noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-69326059280906432542012-05-05T02:15:41.812-07:002012-05-05T02:15:41.812-07:00warm greetings avery's family,
i never, ever ...warm greetings avery's family,<br /><br />i never, ever comment on public blogs, but i felt so incredibly compelled to do so in this case that i had to trust in and follow my heart. i know that nothing i can say or do will help you nearly as much as i would like, but i just so wish that i had a magic wand to erase your pain. i want you to know that i found this blog on the 29th and made a promise to myself that i would share avery's story as far and wide as humanely possible. i felt like my own heart broke the very next day even though i know it's nothing compared to how your family must be feeling. but, i can PROMISE you that i WILL continue to share avery's story. i already made an appointment with my ob-gyn to get tested as well as to urge her to make that a routine practice within the clinic. i won't go into the details of my life, but i have had many heart-wrenching experiences and challenges lately and this story gives me a silver lining in one big way: in short, i will be able to reach many more people now than if my life had gone according to "plan." due to many factors i have to start grad school at least a year late; yet, i am going specifically for a master's and two licenses that all center around being able to help young children. the one i hope to turn into a career is a license as an early interventionist for infants through eight year olds and their families. i did not have ANY information about SMA a year ago, but now because of you i CAN and i WILL spread this story to a necessary group of people. trust me when i say that everyone in my program will learn about SMA and then i'll continue, and so will they, to disperse information to everyone in oregon and beyond. it's so many tragedies put together, but incredibly due to all of those, i can spread avery's story and information about SMA much farther than would have ever been possible for me previously. it actually makes me angry that i've studied pregnancy/birth/nursing/infants/infant development/child care/child psychology/special needs etc. etc. etc. and SMA has NEVER even been mentioned. this needs to be a topic within school curriculum: especially for people studying child psychology, early childhood development, and/or early childhood teaching among many other subjects. i'm very disappointed in myself for not knowing anything about this and it motivates me to help you change many of the ways in which this country runs. i am going to do everything i can to make sure parents get tested, if they wish, and that "we" (as early interventionists) add SMA to something we look for and assess as early as possible so that parents are informed and their children can get what the family unit decides is the best treatment option for them. i, along with SO MANY others, would not be able to do any of that without you. thank you so very much for sharing your story with the world. thank you for "giving us" avery. your family is a shining star of inspiration.<br /><br />also, and i know this is quite small, but a certain very special song makes me think of someone in my life and now avery as well. i hope it brings you a little bit of comfort just as it has to me. type in this on youtube and i don't think you will be disappointed:<br />Monique Vieras – You Will Never be Forgotten<br /><br />with humble gratitude and love,<br />alix<br />ps - i am sorry that i cannot capitalize properly at this time in my life even though i did try my best. it is due to an injury and in no way meant to be a sign of disrespect to your family.Alixhttps://www.blogger.com/profile/03112985291106678217noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-16785509939039979222012-05-04T21:22:23.043-07:002012-05-04T21:22:23.043-07:00Sweet and brave Avery, you're gonna continue b...Sweet and brave Avery, you're gonna continue being an inspiration. My prayers are with your parents now, as well as with the doctors who will work on the cure for SMA, for your present and future friends to accomplish as many things on their bucket lists as you did. And all the ones you met and touched their hearts will continue spreading your voice, that's for sure, precious angel!!!<br /><br />Sac, from Bogotá, ColombiaSac-Nictehttps://www.blogger.com/profile/05000758949709785516noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-34037666160055324402012-05-04T21:01:44.198-07:002012-05-04T21:01:44.198-07:00My mother is a nurse for a 22 year old girl with S...My mother is a nurse for a 22 year old girl with SMA. She goes to college, works, is part of a sorority and is one of the strongest girls I know. Every year I donate to help raise awareness of SMA. I want to thank you for sharing your bucket list, memories, smiles and tears in order to bring public awareness to this. Thank you, Avery. You are very loved.Jaclynhttps://www.blogger.com/profile/06258149059628863565noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-78390092189356489672012-05-04T18:50:55.683-07:002012-05-04T18:50:55.683-07:00I just wanted you to know that in the few days tha...I just wanted you to know that in the few days that I knew about Avery and read her story, my heart and mind has been and continues to be deeply touched. I pray for you and your family for peace and strength in this sad time. By sharing your angel with the world, you have shown what love truly is. And Avery showed us all how to live and embrace every day. Thank you.L.A.https://www.blogger.com/profile/05082772195189063970noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-90408172244280014082012-05-04T15:27:13.460-07:002012-05-04T15:27:13.460-07:00I am so sorry for you loss. My best friend went th...I am so sorry for you loss. My best friend went through the same thing but they lost their 3 month old from turner syndrome. I know it is very hard to handle but remember that she is no longer in pain and is happily watching you from heaven. My family is raising money towards Avery and will be donating soon.Juliehttps://www.blogger.com/profile/13739906692851458935noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-32546692352182372062012-05-04T15:12:41.814-07:002012-05-04T15:12:41.814-07:00I am going to donate proceeds from my book to your...I am going to donate proceeds from my book to your cause! Although my daughter was sleeping, I too would have done anything to keep her memory alive. So I wrote a book.<br /><br />http://www.lulu.com/spotlight/letterstoleiaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-5056504497462905812012-05-04T14:03:12.039-07:002012-05-04T14:03:12.039-07:00Avery and Your Parents,
You have touched my heart...Avery and Your Parents, <br />You have touched my heart so much. I have a three month old son and I can’t even imagine what you had to go through. You have been such an inspiration to all of us and I’m sure that because of you, the cure for SMA will be found. You have the best parents on earth and I admire them for what they have done. You made me realize how important is to smile and to not worry about little things. I will try to spread awareness about SMA, and make a donation every month in memory of your precious daughter. Rest In Peace Little Angel.Joannahttps://www.blogger.com/profile/08394975859283581177noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-78233164040570182112012-05-04T13:03:59.462-07:002012-05-04T13:03:59.462-07:00Donated in bittersweet memory of Avery. Thank you...Donated in bittersweet memory of Avery. Thank you for educating me about SMA.Ruthiehttps://www.blogger.com/profile/10147762577305646518noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-29043441550980487182012-05-04T12:15:13.642-07:002012-05-04T12:15:13.642-07:00You have shown amazing grace while walking this pa...You have shown amazing grace while walking this path in life. You are an awesome family with lots of love to share. the parents of a true angel. To cross another item off Avery's Bucket List, go to http://www.songsoflove.org/ and she can have a song written especially for and about her. Here's another item for Avery's list, help her be a big sister.ShyOnehttps://www.blogger.com/profile/08675924594827437679noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-25146651842212588992012-05-04T11:57:42.418-07:002012-05-04T11:57:42.418-07:00Googling 'Averys Bucket List' results in a...Googling 'Averys Bucket List' results in about 17,500,000 returns - wow! You've walked this path in life with amazing grace. To check another item off Avery's Bucket List, go to http://www.songsoflove.org/ for Avery to have her very own song especially for her. Your love for your daughter is clearly felt through Avery's story and has made he world a better place.ShyOnehttps://www.blogger.com/profile/08675924594827437679noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-45583299424667221472012-05-04T07:21:56.074-07:002012-05-04T07:21:56.074-07:00Our family just donated $25 to The Sophia's Cu...Our family just donated $25 to The Sophia's Cure foundation in honor of Avery. May God bless your family and all your future endeavors. Avery is most certainly smiling and dancing in heaven. Sending you love from Colorado.Mom on the runhttps://www.blogger.com/profile/02897540984162294220noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-73639788532551743282012-05-04T06:33:35.478-07:002012-05-04T06:33:35.478-07:00I pray for your little angel on the other side of ...I pray for your little angel on the other side of the Atlantic, just as I pray for Chloe (8 months) who passed away last Monday as well. She was diagnosted with SMA when she was a couple of weeks old. The burrial ceremony was organised today at 1.00 pm. Needless to say the church was full. Kind regards from FranceFrench Mariannehttps://www.blogger.com/profile/13163512934507770599noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-36748919870154965772012-05-04T06:30:16.332-07:002012-05-04T06:30:16.332-07:00Querida familia, soy de Argentina y he tomado cono...Querida familia, soy de Argentina y he tomado conocimiento de su historia y no hay palabras para decirles ante un dolor tan desgarrador.<br />Sólo quiero transmitirles, desde mi lugar como el de muchos otros, MUCHO RESPETO, ADMIRACIÓN Y AMOR, que les llegue a sus corazones el amor que les manda tanta gente y les de la fortaleza de seguir adelante con la convicción de que su hija fue feliz y que ahora está en un lugar maravilloso velando por ustedes. <br />Todos venimos a esta tierra a cumplir una meta sin saber el tiempo que nos tomará, el de ella se cumplió hoy, ya físicamente no está entre nosotros, pero su corto paso por este mundo terrenal ha dejado una lucha y una mision que junto a sus papás iniciaron para difundir su enfermedad y para difundir que con amor las cosas que se hacen tienen un valor inmenso. Son una muestra de BATALLA Y AMOR INMENSA.<br />Mucha fuerza para ustedes y sus familiares.<br />Con mucho cariño y respeto.<br /><br />Paula<br />Córdoba<br />ArgentinaDerecho Accesiblehttps://www.blogger.com/profile/01930358742324240757noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-11287580444056029822012-05-03T19:16:36.109-07:002012-05-03T19:16:36.109-07:00I am the mother of the little girl whose dress Ave...I am the mother of the little girl whose dress Avery loved. It was a gift and I was trying to get another one like that for Avery. She grew her wings before I could do that. You are a remarkable family ,channeling your grief to help others. Thank you for sharing your precious daughter with the world.Love you all.Baby V's momhttps://www.blogger.com/profile/16823147790044330018noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-52464017722189297972012-05-03T18:53:26.604-07:002012-05-03T18:53:26.604-07:00There was a deep sadness when I heard/read that Av...There was a deep sadness when I heard/read that Avery had passed. It didn't take much to have this little blessing wrap her heart around mine and take me gently on her journey through life - to see the world around her through her eyes and to experience the miracles, the shared laughter all the while rooting for her to kick her legs in the water and cheering at the first pitch. She is a scrumptious little morsel of pure sweetness that has made me look past the mundane and enjoy a different view.<br /><br />.....whatever that means.TateTwohttps://www.blogger.com/profile/05425409369625190878noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-6494919588682862262012-05-03T17:37:49.456-07:002012-05-03T17:37:49.456-07:00My heart aches for you. I have been following your...My heart aches for you. I have been following your blog daily and was devastated to discover that Avery has passed. As a mother of a daughter born on 11/8/11, I feel so connected to you and Avery. She seemed like such a joy to you and your family, as my daughter is to me. Ever with her diagnosis, Avery's passing seems so sudden and surreal. I am so deeply, truly sorry for your loss. I admire you for sharing your sweet Avery and her story with me, and for reminding me how truly precious life is. Avery is so loved and will be terribly missed. I will not forget her.Katyhttps://www.blogger.com/profile/05699385364614892372noreply@blogger.com