tag:blogger.com,1999:blog-9188356437468688857.post1974521220721635336..comments2024-02-02T08:45:57.743-08:00Comments on Avery's Bucket List: Where do I even begin (part 2 - Monday/Tuesday)AveryCanhttp://www.blogger.com/profile/04114885815609492616noreply@blogger.comBlogger234125tag:blogger.com,1999:blog-9188356437468688857.post-28844032514439319252012-05-08T20:10:26.607-07:002012-05-08T20:10:26.607-07:00That is beautiful, Kristin! I am looking forward ...That is beautiful, Kristin! I am looking forward to the day that there is indeed a cure for SMA.Annhttps://www.blogger.com/profile/13984216679056010867noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-29018869441492064532012-05-04T18:48:54.263-07:002012-05-04T18:48:54.263-07:00I am so sorry about your sons :(I am so sorry about your sons :(Gracehttps://www.blogger.com/profile/14234607682464766276noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-10572285000127292942012-05-04T18:47:30.172-07:002012-05-04T18:47:30.172-07:00Avery is being held by angels!! I am praying for y...Avery is being held by angels!! I am praying for you guys :)Gracehttps://www.blogger.com/profile/14234607682464766276noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-40105217981666544652012-05-02T21:19:58.186-07:002012-05-02T21:19:58.186-07:00RIP AVERY! I knew when I started reading your blog...RIP AVERY! I knew when I started reading your blogs there could be a time when I would come on here and read something I wouldn't like, but I was still so shocked and heartbroken, but for some reason I always thought you would somehow miraculously be cured. I have never greived and cried so much over someone I didn't know, and I am still greiving for you and your family. You and your amazing parents are in my thought and prayers, as well as all your friends that have or will be affected by SMA(which I has never heard of before you). I'm so glad your parents have spread the word, and even in your passing are fighting for a cure in your honor! I just wish the cure could of came before you were called to heaven. Rip Sweet Angel! #smashSMAAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-28181617553570582722012-05-02T19:15:51.812-07:002012-05-02T19:15:51.812-07:00My prayers and condolence's are with you, her ...My prayers and condolence's are with you, her family and all of her friends. I was very upset to see that she passed away. She is at peace now away from all the pain. I think you are amazing parents, she couldn't have asked for better. What you guys did for her to make sure she had the best 5 1/2 months of her life is wonderful. You guys did and gave her everything you could that she would never of had. She reminds me of my almost 2 year old daughter Shelbie. Always smiling and always happy. May this tragedy and little life cut way too short bring hope for others. May all this world wide awareness bring a cure to other babies and children fighting with SMA. God bless you and baby Avery. You will be missed baby girl!!!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-72335000823804043032012-05-02T17:47:07.485-07:002012-05-02T17:47:07.485-07:00Your story brought me to tears. You two are GREAT...Your story brought me to tears. You two are GREAT parents. How lucky Avery was to have you two, and how lucky you were to have her. What a wonderful way to send her to heaven! Smiling :) You guys warmed my heart, and the out pouring of response from people willing to help Avery achieve her Bucket List is over powering and touching. You two take care during this difficult time.Rachelhttps://www.blogger.com/profile/06527954947260560232noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-66647485040020760392012-05-02T13:35:51.768-07:002012-05-02T13:35:51.768-07:00I just spent a few minutes watching some of your v...I just spent a few minutes watching some of your videos of your beautiful baby girl and I have to tell you that you both seem like amazing parents! My heart just aches for you with the sudden loss of your sweet Avery. But I am so encouraged because it is obvious that God knew what He was doing when He gave Avery to both of you because you made her short life on earth so incredibly special, not only with her bucket list, but even in the little things like her tea party and bathtime.Anonymoushttps://www.blogger.com/profile/05938511086972247350noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-30702746311493552342012-05-02T11:45:19.646-07:002012-05-02T11:45:19.646-07:00I have found a lot in life to be thankfull for, an...I have found a lot in life to be thankfull for, and even more to be thankfull after reading your story. My heart as well as the hearts of my family go out to you and your family. One thing that I wuld like to say is that there aren't many times when the spirit of humanity and of love comes shining through muck as clearly and brilliantly as it does in this story. Your daughter is beautiful, and you as parents gave your daughter and her passing purpose and meaning, with nothing more than love, selflessness and a desire to better the world around you. Thank you.vagaries0220https://www.blogger.com/profile/08823564015303705784noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-37110341371918210772012-05-02T07:26:35.125-07:002012-05-02T07:26:35.125-07:00Everyone who has had there hearts touched and has ...Everyone who has had there hearts touched and has fallen in love with Avery are in my thoughts and prayers. There is an organization called balloonrelease.com. It is a memorial website in which you tell your story, tie it to a balloon and have a balloon release in your loved ones memory. My friend Julie lost her son to suicide on December 2, 2011. Saturday would have been his 15th Birthday. She organized a balloon release in Zacks honor. My son's (12) and (13) found so much joy in releasing those balloons. I love the opportunity to expose my kids on how to make a difference and to help other people. We went downtown (Chicago)over Christmas and the highlight of their day was stopping at McDonald's on the way back to the train to pick up a couple meals and give them to a homeless mom and her little girl (she couldn't have been older than five). We had seen them on the bridge when we got off the train and were walking to Macy's. We planned it out and that was the highlight of their whole day. They couldn't stop talking about it the whole ride home. My 13 year old wanted to go home and gather all our extra coats, blankets and other warm clothing and go visit Millennium Park to distribute the warm items. Kids are so kind and loving. Please know that my next donation will go to help Avery's foundation and we will be doing a Balloon Release in Avery's memory. God bless you and I will do everything to help spread the news on Avery's condition. I can't wait to add Avery and share posts <3<br />Lisa SchmitzLisa Schmitzhttps://www.blogger.com/profile/11353994999478455842noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-85998766611172187302012-05-01T10:57:23.333-07:002012-05-01T10:57:23.333-07:00Our condolences to your family and friends through...Our condolences to your family and friends throughout the world. Vaya con Dios, little one.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-77298025231353950482012-04-30T12:37:49.065-07:002012-04-30T12:37:49.065-07:00Hi! sweet heart~
here is Korea~very far from there...Hi! sweet heart~<br />here is Korea~very far from there~<br />I have a daughter who is same age as you so i was touched by your blog.<br />You are so lovely~and always in our heart.jieunhttps://www.blogger.com/profile/14228265807246282078noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-38125721191996855102012-04-29T18:41:34.678-07:002012-04-29T18:41:34.678-07:00Lucky girl.. firemen! Woohoooo! I haven't be...Lucky girl.. firemen! Woohoooo! I haven't been picked up by a fireman and I'm 45!Adirondackcountrygalhttps://www.blogger.com/profile/08647770774053345725noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-78473435232438212422012-04-29T16:53:57.330-07:002012-04-29T16:53:57.330-07:00you are beautiful and I am having so much fun smil...you are beautiful and I am having so much fun smiling while reading your posts. I especially love the video of you with your sponge stick thing (Not sure what it's called). We don't have a baby just yet, but I want to thank your Mommy and Daddy for sharing their story so I know to ask about this condition. I am a physical therapist so I have heard of it, but never really learned about it as much as you are teaching me. So thank you and your parents for me okay?! I will share your story on my Facebook page and I hope you can continue to check fun things off your bucket list - I will be checking back! :) :):)Nicolehttps://www.blogger.com/profile/00198433727361133179noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-31124984900894651522012-04-29T09:49:00.810-07:002012-04-29T09:49:00.810-07:00Hi Avery I love reading ur post my sons teacher ha...Hi Avery I love reading ur post my sons teacher has a daughter with SMA he updates me on her every chance he gets so have fun tackling ur bucket list I will be reading ur post tell mommy and daddy our prayers are with all of upateprincesshttps://www.blogger.com/profile/05403317119145049465noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-74132026117961557842012-04-28T22:24:02.610-07:002012-04-28T22:24:02.610-07:00You made it to CNN!
http://www.cnn.com/2012/04/28...You made it to CNN!<br /><br />http://www.cnn.com/2012/04/28/us/texas-baby-bucket-list/index.html?hpt=hp_t3Jenn Starchttps://www.blogger.com/profile/10389212471800038909noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-989720412656466332012-04-28T18:12:26.504-07:002012-04-28T18:12:26.504-07:00Please add $25 to your $1m total from Christian S....Please add $25 to your $1m total from Christian S. in Ohio. you are very inspiring!!! Thank you.ilovepotpieshttps://www.blogger.com/profile/10222385266624861858noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-77966573751912571622012-04-28T15:35:09.174-07:002012-04-28T15:35:09.174-07:00i admire both of your parents to do everything fro...i admire both of your parents to do everything from A to Z! Avery, you are a beautiful girl! You are a brave girl to go every events, and I am glad that your mom and dad are wonderful and take you everywhere so you cant miss anything in your life... You are always in my mind, thought of you!! You made me tear of your lovely stories!! THank you for sharing with me. Even thought I havent met you nor your parents. I even share with my friends about you, and think of you. My daughter, 11 months old would love to meet you and play with you! God bless, and speedy recovery. Hope there will be cure for SMA!admirehttps://www.blogger.com/profile/08545887552835155424noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-62055325312455489972012-04-28T14:12:55.004-07:002012-04-28T14:12:55.004-07:00Avery the world is truly blessed because you and y...Avery the world is truly blessed because you and your parents are in it. Believe in miracles i'm living proof they still exist!Unknownhttps://www.blogger.com/profile/15047220643747434779noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-36111269016318072012012-04-28T13:53:23.821-07:002012-04-28T13:53:23.821-07:00Oh, Avery...
I just saw your really long list on ...Oh, Avery...<br /><br />I just saw your really long list on the UK Daily Mail page. I'd already read a lot of your blog.<br /><br />I'll bet somebody can help you sit on your daddy's shoulders. And maybe you could go on the Galveston Ferry!<br /><br />And hey - PRETEND you're scared of the bogeyman in the closet. They'll never know and it'll work, I promise.<br /><br />Your daddy is putting down your words VERY well - (you're pretty funny, girl!) and your mommy is VERY pretty. (Just like you.)<br /><br />Try a chocolate chip cookie if you get a chance - they're REALLY good!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-18528025572445854632012-04-28T13:52:23.959-07:002012-04-28T13:52:23.959-07:00Hey Avery! You are so Adorable! I want to hug you ...Hey Avery! You are so Adorable! I want to hug you and kiss you. To your mom and dad, you are so beautiful. You have a beautiful family. You are good people. I will include you in my prayers. :) with GOD, everything is possible. GOD IS GOOD ALL THE TIME!! be happy always Avery and be strong! <br /><br />lots of love! mimi from Davao City, Philippineslucy__luzhttps://www.blogger.com/profile/04341390738333080138noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-59006511263720627372012-04-28T13:43:37.320-07:002012-04-28T13:43:37.320-07:00Hi Avery!!!
Christmas will be coming up soon an...Hi Avery!!! <br /><br />Christmas will be coming up soon and I wanted to let you know that when you are ready to decorate, I have everything you need. I also have santa's phone number. So that he can come for a visit. I live in a city where I have won best decorated house 3 years in a row. So when you are ready to mark Christmas off your bucket list you let me know...OK? Hope to see you soon... BYE!!!Robert Strattonhttps://www.blogger.com/profile/11716982464366930535noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-20926261518201493912012-04-28T13:36:17.066-07:002012-04-28T13:36:17.066-07:00Hey little Avery! I have something I want to offer...Hey little Avery! I have something I want to offer you, if you are interested. I have a business in williamsburg, VA and I take pictures of little angels like you! I saw you wanted to try on all your clothes and have a photo shoot and i would love to give you a free photo shoot here in colonial williamsburg! It is called Nellie's Little Pictures! Sadly i lost all of my pictures when my computer needed to be fixed, but i have some up that i took recently. Take a look and see if you would like for me to give you your photo shoot! I made a Facebook page just so you could see. If not, i hope you get one fit for a princess because you are one! <br /><br />http://www.facebook.com/NelliesLittlePicturesNelliesLittlePictureshttps://www.blogger.com/profile/08149158863226060128noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-71814801603469379062012-04-28T13:33:57.363-07:002012-04-28T13:33:57.363-07:00Hi, Avery! My name is Jan but the sign-in didn'...Hi, Avery! My name is Jan but the sign-in didn't accept my onscreen name.<br /><br />Could I be your small-town, Illinois grammy? I have grandsons but they're really BIG - 18 and 12 - and little girls are WAY more fun!<br /><br />I read about you on Yahoo - you could cross THAT off your bucket list, too, cause most of us never get a headline there. :-)<br /><br />Can I just say that I agree with all the things that everybody here has told you? You are indeed a beautiful little girl, with an absolutely AMAZING Mommy and Daddy and I can hardly wait to see all the other things you add to your list.<br /><br />(Try a chocolate chip cookie if you get the chance - best ever)<br /><br />Love to you and your very strong,awesome mommy and daddy!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-25825788038437686872012-04-28T13:18:28.009-07:002012-04-28T13:18:28.009-07:00Dear Family
When a person with compassion reads th...Dear Family<br />When a person with compassion reads these stories of suffering the response is often, " I wish I could do something!" <br />I know somewhat of the pain that comes from severe circumstances , as my second son went through 3 rd degree burns. At 14 months of age. A parent would take their place, give their skin, and you do stand with them till you can't even remember where you parked your car; We pray pray pray. My outcome didn't see his life end , although his burns which covered 33% of his little body certainly could have ended his time here on earth.<br />My days after that were consumed with burn care,Aseptic cleaning, massages, dressing his wounds many times a day, weekly trips back to the burn center after we were discharged from the ICU burn unit 3 weeks after the accident. It was a labor of love . It was exhausting.<br />I then found much wisdom and health in herbal remedies/ alternative medicine. The aloe I applied to his skin each bath time finally brought skin cells to life in the area where the MD's thought impossible. They had started talking about re admitting him for grafts. <br />My research continued , my other son having allergies. I then found www.hacres.com. Within it's pages there are so many testimonies from people who have known healing from diabetes to MS.<br />So This is what I am doing. Sharing wisdom and praying for Hope to blossom . May God be with you. <br />Thanks for sharing your storyDennis Bakerhttps://www.blogger.com/profile/06259627143736299874noreply@blogger.comtag:blogger.com,1999:blog-9188356437468688857.post-67338035310965859952012-04-28T12:47:52.531-07:002012-04-28T12:47:52.531-07:00God bless you, Avery, and your loving, brave, reso...God bless you, Avery, and your loving, brave, resourceful parents. I have a 10 month old son who would love to meet you! :) As a parent, your story has deeply touched me. I have written The Ellen Show about your story and I hope you get to be on her show. I am also donating $25 to the MDA in your honor. You are a precious sweetheart girl.L.A.https://www.blogger.com/profile/05082772195189063970noreply@blogger.com